Tuesday, October 13, 2009

Sayen good bye to my friend and new doctor's




Well my friend Brittany and i have been haven a blast and we have been running all over saintpetersburg. Going to the beach , the pier, and the old fort and the Mall.. It has been so much fun hangen out with someone who get's me and what i deal with . But the only thing is that its been very very hot and ugh that has been hell to deal with and i live in this heat all the time. brittany dose not i mean its hot where she is but not like the heat down here...
Here sre some of our fun pic's

we did our hair !!


Here are some photo's of my pet's she took!!!

These are some pic's brittany took..





I know we are weird hehe....













The shells we found when we were at the beach hehe it was fun ! Some of the pic's from Fort De Soato beach and historical park. It was fun and we got so much sun burn..






It was all going great but when we got home from the beach i could not touch my ear's and its because they both were infected .....UGH i will not get another any thing like that done again. So we had to go down to the er for them to take them out Oh God that HURT.....


My ear's before they got to them!!!!Nurse Phile

Sad because they are going to take the new ear rings out.








Callen dad and told him the news



























Thursday, October 1, 2009

Where the wild girl's stay !!!

I know what you thinken what the heck is she talken about well saturday the 17th my best friend Brittany is commen !!!!

I asked her two year's ago if she would like to come and stay with us for a few week's and she was like yes!!! So last month i got her plan ticket can i told her that the dream trip was on !! I know she is worried about commen here and stuff because you see we have never seen each other we have only talked on the phone and on the web. I have to say i am a little worried to because i am scared that she will not like me but i know it will all work out .

So she will be here for 2 week's and thank god the weather is changen and getten alittle cooler so it will be nice . I do feel bad because she will be on a plan for like 5hour's but it will all be worth it just to see my friend for the frist time. I also know she is worried about money i told her not to worry this is a gift we both have stressful live's and it will be nice for her to get a way for a little while.

So brittany i will see you on saturday !!! CAN'T WAITE !!!

Monday, September 21, 2009

Yay and new doctor that can HELP !! WRONG!!!!!!







Well today was the day i would see if this new doctor could help . Well my appointment was at 3:15 and mom and i got lost going to the office when we got there its was 3:45. and the girls in the front were very nice and they said it was not problem. so i did the paper work and then we were showen to a room and we were only in it for maybe 5 minute's if that before the doctor came in ! I was like wow that was fast. so he came in and asked us what was going on i told about how i was haven a horriable time with typen moven my fingers and how they would slip out of joint..


Then came the question very one who was EDS had been asked !! DO YOU KNOW WHY THIS IS GOING ON ?????? I proudly said yes i said i have Ehlers ~Danlos Syndrome!! The doctor looked at me then at my mom and said in such plane word's OH!!! He said he has never heard of anyone haven EDS nor has he treated some with it !!!


My high hopes went down the sink like my sprite did 2 minute's before he came in. Any ways he asked me to show him my hand's and i said ok hopen that he would not kill them . Here are some photo's of what he asked me to do.




He had me pull my thumb back on both hand's to see how far they could go!! upper is (left hand)

here is the (left hand)




hand layed out flat finger's hyper flexed!!




Well if all that was not bad enough he started tryen to pull my fingers out of their joint's so he is pushen and pullen and bending my finger's every way they could go. He then said well i don't think your finger's have ever popped out because i can't MAKE THEM POPPOUT OF ALINEMENT!!!! My mom's jaw dropped i said well they do popout just because you can't pull them out dose not mean they don't .



So then i asked him about the ring splint's for them and he said well you can't wear splint's on all your finger's or all the time. So long story short i am not going back to him and i am going to have to find another way to get my ring splint's . Below are how my hand's looked when i got home ..














































































































Friday, August 28, 2009

Fave song that helps me in hard times

I am a big David Cook fan and have been from the frist time i saw him on AMERICAN IDOLE. I listen to his songs on my mp3 player at night when i am tryen to get some rest but one song helps me keep my head up high the song is called (HEROS)

As the sun goes down in front of meIt reminds of me of where I want to beWith you and you aloneHold me in like you were made for meI'm losing faith in gravityI just need to let you knowAnd I just need to let you knowI'm not going to come downDown off of these cloudsAll these heroes come and goBut you're still standingYou teach me to rise upTo open my eyes upAll these heroes come and goBut you're still standingYou're still standingYou know the world's confusingI don't careI crawl into your atmosphereI know you'll make it rightYou're all I need to knowI'm not going to come downDown off of these cloudsAll these heroes come and goBut you're still standingYou teach me to rise upTo open my eyes upAll these heroes come and goBut you're still sandingI believe that you can save meAnd you'll never let me fallI'm not going to come downI believe in what you've shown meThere's ahero in us allI'm not going to come downDown off of these cloudsAll these heroes come and goYou teach me to rise upTo open my eyes up

Thursday, August 27, 2009

Life sucks

Finally more News updates!!!!

Well the Amoxicillin i have been on now for over 3 weeks is finally taken hold of the Upper Restory Infection . Two weeks ago mom had to take me down to Bayfront because i was getten sick and my Doctor was out of the country and i called the office and they said that i could not get in so mom and i end up going to Bayfront ER because that is were they told us to go and well we got there are 10:30am and did not leave till 6:00PM !!!
So i was give a diffrent type of amoxillin to take and it did not help so mom took me to the walk in clinic last Thrusday because i was still sick as a dog and getten worse . Well it turns out i all also had a case of very bad tonsil infection so geuss what had to come out NOW!!!! Great another trip to bayfront in the next few months.
Not going to be able to see the pain doctor because the car's A/C wants to act up so there gose that trip.So no pain meds for a month or two because my medacare dosenot start till october so and there are no more pain doc's that will take what i have now so i have to waite.
But on the hole i am doing better i am all healed up from my last surgery the doctor is going to keep me in his system because he is really the only doctor that will do surgery on me because of the eds. Soo that is all i have to report for now ..
C-YA

Tuesday, August 18, 2009

You find out twho your friends are (WARING HAS STRONG LAUNGE)

I got a email from a so called friend last night i wanted to share it with you, I can't belive how hurt full the people you once thought understood you could be ...


Dear Megan.

You know i though we were best friends i call you up to hang out and you give me some stupid ass reason why you can't like your sick or your in to much pain ! Come on if you don't wanna hang out with me if then tell me and it would not be a problem but your not tellen me the truth and i know that there is no way your sick very week end and shit like that. Girl your such a fucken lier .

Your the worst frind someone could ever have , I wish i never got to know you, yes i tell all my friends about you and they all think your full of shit. I saw you at the store the other day with your mom and you looked fine your not sick you lien pice of shit!!!

I never wanna speak to you agian and i hope to hell your happy that you just lost a 2 1/2 year friend ship BITCH!!!

Monday, August 3, 2009

happy to be home

Well i got home late saturday and the doctors told my mom anddad that the Ehlers danlos did cause the herina so we hope it willnot make any more of them . Then a nuse at the hospital almostkilled me she gave me to much pain med's it is stoped my breathenso i woke to a oxygen mask and all of these nurse all around metryen to get me to breath.
So after that i was not able to have pain meds for 12 hours andthat was HELL.. But i am home and i am happy to be home but i will update more later