Sunday, May 31, 2009


OMG when you have eds haven a tooth ache hurts worse then a normale one !!! I have a bear taped to my head to check my face warm ! the pain is so so BAD!!!!!!!!!!!!!

Tuesday, May 26, 2009

Newest up date !

Hey everyone i am so sorry ihave not posted sooner but i have been sick and i have been very very down . Frist off i am out of my anit- depression med's and i can't get more beucase the mental health place is not going to carry the cymbalta anymore and then they gave me something different that i have tryed and its make me very very jumpy and i was breaken down and stuff like that.

So i have to waite till June 11th to go back to my (PCP) and see if he can give me the cymbalta agian because i was feelen pretty good on it . I am still haven trouble with my GI track and i have not been able to get to the GI doc because my health coverage has changed and i now have my medicade card so i i have to waite till june.

My pain (UGH GOD I HATE IT !!!) i am going to ask my doctor to send me to a pain clinc because the pain is getten so bad i am chewen on my lower lip and its all sore and bleeded and stuff. so that is not good . my lortabe is just not doing it any more and i feel so sick all the time and half of the time i do get sick !

I go back to the heart clinc on june 1st for them to check out my (PVS) and to see if my heart is ok from the EDS. but other then that i just try to take one day at a time because that is all you can do .. AND DUCK TAPE NEVER HURTS TO USE TOO ...

Thursday, May 14, 2009

Not so good news :(

Well i went to the doctor 2 days ago and i found out some not so good news ... Frist off we found out i have 2 hernia's one is on the wall of my stomach and the other one is looped around my colon. Now i have to wait to see a GI doctor god only know how long i will have to waite. But what got me mad the most is that i had this CT scan done at the ER last month when my mom took me and I can't belive my Doctors office didnot call and tell me or have me come in sooner.

I mean its bad now but with the EDS that makes it worse. I don't know what to think anymore..

sorry this is so short but we have bad storms in the area so i will make it longer later.