New doctor today.

Well the day is here i go to my frist appt with my new pain mangment doctor later this moring my appt time is 10:30 but i have to leave here around 8-8:30. to get there because he is along way from us if anyone knows about florida i am in saintpetersburg and this guy is in brandon so its a long drive.



Iam happy to say that my headache's have started to go away after a month and a half ugh i was getting so sick of my head hurten me all the time and this was not one of those headaches were you could just go on with your everyday life this one was keepen me down . I didnot come out of my room much at all i mean for like the past two week's i have maybe come out of my room 3 times but that was to leave the house for other doctor appt's .




Well i got back home around 2:30 this afternoon and i was so wiped out i took a nice hot shower and a nap . so here is the update !!! This doctor was so nice and he knew about eds and stuff so he was asken me where my pain was today and luckly this was a bad flare day so he could see how it effected me . So he asked me about all my med's and i told him that if my current pain meds were helping me i could not feel and diffrent. So he changed my pain meds and he upped one by 100mg's . and he told me he wants me to have phsical/aqua therapy so i will call the place on monday.

So all and all this was a great today !!!!

The Climb ( a song by young Miley cyrus)

I can almost see it

That dream I am dreaming

But there's a voice inside my head saying

"You'll never reach it"

Every step I'm taking

Every move I make feels

Lost with no direction

My faith is shaking

But I gotta keep trying

Gotta keep my head held high

There's always gonna be another mountain

I'm always gonna wanna make it move

Always gonna be a uphill battle

Sometimes I'm gonna have to lose

Ain't about how fast I get thereAin't

about what's waiting on the other side

It's the climb...

The struggles I'm facing

The chances I'm taking

Sometimes might knock me down

But no, I'm not breaking

I may not know it

But these are the moments that

I'm gonna remember most, yeah

Just gotta keep going..

And I, I got to be strong

Just keep pushing on

'Cause there's always gonna be another mountain

I'm always gonna wanna make it move

Always gonna be a uphill battleSometimes

I'm gonna have to lose'

Ain't about how fast I get there

Ain't about what's waiting on the other side

It's the climb, yeah!

There's always gonna be another mountain

I'm always gonna wanna make it move

Always gonna be an uphill battle

Somebody's gonna have to lose

Ain't about how fast I get there

Ain't about what's waiting on the other side

It's the climb, yeah!

Keep on moving,

keep climbing

Keep the faith,

babyIt's all about

it's all about the climb

Keep the faith, keep your faith, whoa

Headache's

Its so weird i will not have a headache for like 2 months and then out of the clear blue sky i get one and it will stay for like week's or months . I went to the nuro and he want a scan of my head and he put me on a new med but it was not cover and so i am still with no headache med's and the doctor cancled my head ct . No one even called to tell us that and we were on the way out the door to go.

But i geuss i will see what happend's well i am going back to bed my head is killen me

~~~~~~*Pain*~~~~~~

This is something i wrote the other day when i was at the doctor's office


Why do i have to suffer alone in life
why must i fight this invisable fight everyday and everynight
Why must i lay in bed squrriming in pain unable to rest find my long to short day.

Why must i put up with people's give me dirty looks
It must be that they can't see my everyday fight. they judge me on my looks
and what i do why do you care it's not like its you.

I have many things wrong with me it's a given fact.
It must be it must be that you can't see what is wrong with me
So you seem to prejudge that.

I fight alone day and night this invisable fight
some people will never understand and that dose not seem right.
I ask god why must i suffer alone day and night
Why must i fight this disease all my life
why must i suffer in pain .

Everyday and Everynight.

By
Megan Tharp

Sayen good bye to my friend and new doctor's

Well my friend Brittany and i have been haven a blast and we have been running all over saintpetersburg. Going to the beach , the pier, and the old fort and the Mall.. It has been so much fun hangen out with someone who get's me and what i deal with . But the only thing is that its been very very hot and ugh that has been hell to deal with and i live in this heat all the time. brittany dose not i mean its hot where she is but not like the heat down here...

Here sre some of our fun pic's

we did our hair !!

we are oooh so thug ..

Here are some photo's of my pet's she took!!!

These are some pic's brittany took..

I know we are weird hehe....

The shells we found when we were at the beach hehe it was fun ! Some of the pic's from Fort De Soato beach and historical park. It was fun and we got so much sun burn..






It was all going great but when we got home from the beach i could not touch my ear's and its because they both were infected .....UGH i will not get another any thing like that done again. So we had to go down to the er for them to take them out Oh God that HURT.....


My ear's before they got to them!!!!Nurse Phile

Sad because they are going to take the new ear rings out.

Callen dad and told him the news

Where the wild girl's stay !!!

I know what you thinken what the heck is she talken about well saturday the 17th my best friend Brittany is commen !!!!

I asked her two year's ago if she would like to come and stay with us for a few week's and she was like yes!!! So last month i got her plan ticket can i told her that the dream trip was on !! I know she is worried about commen here and stuff because you see we have never seen each other we have only talked on the phone and on the web. I have to say i am a little worried to because i am scared that she will not like me but i know it will all work out .

So she will be here for 2 week's and thank god the weather is changen and getten alittle cooler so it will be nice . I do feel bad because she will be on a plan for like 5hour's but it will all be worth it just to see my friend for the frist time. I also know she is worried about money i told her not to worry this is a gift we both have stressful live's and it will be nice for her to get a way for a little while.

So brittany i will see you on saturday !!! CAN'T WAITE !!!