Yay and new doctor that can HELP !! WRONG!!!!!!

Well today was the day i would see if this new doctor could help . Well my appointment was at 3:15 and mom and i got lost going to the office when we got there its was 3:45. and the girls in the front were very nice and they said it was not problem. so i did the paper work and then we were showen to a room and we were only in it for maybe 5 minute's if that before the doctor came in ! I was like wow that was fast. so he came in and asked us what was going on i told about how i was haven a horriable time with typen moven my fingers and how they would slip out of joint..

Then came the question very one who was EDS had been asked !! DO YOU KNOW WHY THIS IS GOING ON ?????? I proudly said yes i said i have Ehlers ~Danlos Syndrome!! The doctor looked at me then at my mom and said in such plane word's OH!!! He said he has never heard of anyone haven EDS nor has he treated some with it !!!

My high hopes went down the sink like my sprite did 2 minute's before he came in. Any ways he asked me to show him my hand's and i said ok hopen that he would not kill them . Here are some photo's of what he asked me to do.

He had me pull my thumb back on both hand's to see how far they could go!! upper is (left hand)

here is the (left hand)

hand layed out flat finger's hyper flexed!!

Well if all that was not bad enough he started tryen to pull my fingers out of their joint's so he is pushen and pullen and bending my finger's every way they could go. He then said well i don't think your finger's have ever popped out because i can't MAKE THEM POPPOUT OF ALINEMENT!!!! My mom's jaw dropped i said well they do popout just because you can't pull them out dose not mean they don't .

So then i asked him about the ring splint's for them and he said well you can't wear splint's on all your finger's or all the time. So long story short i am not going back to him and i am going to have to find another way to get my ring splint's . Below are how my hand's looked when i got home ..

Fave song that helps me in hard times

I am a big David Cook fan and have been from the frist time i saw him on AMERICAN IDOLE. I listen to his songs on my mp3 player at night when i am tryen to get some rest but one song helps me keep my head up high the song is called (HEROS)

As the sun goes down in front of meIt reminds of me of where I want to beWith you and you aloneHold me in like you were made for meI'm losing faith in gravityI just need to let you knowAnd I just need to let you knowI'm not going to come downDown off of these cloudsAll these heroes come and goBut you're still standingYou teach me to rise upTo open my eyes upAll these heroes come and goBut you're still standingYou're still standingYou know the world's confusingI don't careI crawl into your atmosphereI know you'll make it rightYou're all I need to knowI'm not going to come downDown off of these cloudsAll these heroes come and goBut you're still standingYou teach me to rise upTo open my eyes upAll these heroes come and goBut you're still sandingI believe that you can save meAnd you'll never let me fallI'm not going to come downI believe in what you've shown meThere's ahero in us allI'm not going to come downDown off of these cloudsAll these heroes come and goYou teach me to rise upTo open my eyes up

Life sucks

Finally more News updates!!!!

Well the Amoxicillin i have been on now for over 3 weeks is finally taken hold of the Upper Restory Infection . Two weeks ago mom had to take me down to Bayfront because i was getten sick and my Doctor was out of the country and i called the office and they said that i could not get in so mom and i end up going to Bayfront ER because that is were they told us to go and well we got there are 10:30am and did not leave till 6:00PM !!!
So i was give a diffrent type of amoxillin to take and it did not help so mom took me to the walk in clinic last Thrusday because i was still sick as a dog and getten worse . Well it turns out i all also had a case of very bad tonsil infection so geuss what had to come out NOW!!!! Great another trip to bayfront in the next few months.
Not going to be able to see the pain doctor because the car's A/C wants to act up so there gose that trip.So no pain meds for a month or two because my medacare dosenot start till october so and there are no more pain doc's that will take what i have now so i have to waite.
But on the hole i am doing better i am all healed up from my last surgery the doctor is going to keep me in his system because he is really the only doctor that will do surgery on me because of the eds. Soo that is all i have to report for now ..
C-YA

You find out twho your friends are (WARING HAS STRONG LAUNGE)

I got a email from a so called friend last night i wanted to share it with you, I can't belive how hurt full the people you once thought understood you could be ...


Dear Megan.

You know i though we were best friends i call you up to hang out and you give me some stupid ass reason why you can't like your sick or your in to much pain ! Come on if you don't wanna hang out with me if then tell me and it would not be a problem but your not tellen me the truth and i know that there is no way your sick very week end and shit like that. Girl your such a fucken lier .

Your the worst frind someone could ever have , I wish i never got to know you, yes i tell all my friends about you and they all think your full of shit. I saw you at the store the other day with your mom and you looked fine your not sick you lien pice of shit!!!

I never wanna speak to you agian and i hope to hell your happy that you just lost a 2 1/2 year friend ship BITCH!!!

happy to be home

Well i got home late saturday and the doctors told my mom anddad that the Ehlers danlos did cause the herina so we hope it willnot make any more of them . Then a nuse at the hospital almostkilled me she gave me to much pain med's it is stoped my breathenso i woke to a oxygen mask and all of these nurse all around metryen to get me to breath.
So after that i was not able to have pain meds for 12 hours andthat was HELL.. But i am home and i am happy to be home but i will update more later

Starten on Wensday the 29th i will be at Bayfront Medical Center 701 6th St. S. Saint Petersburg, FL 33701. my surgery is at 7:30 am

Hospital main Phone 727-823-1234

Cell phone- 727-515-4990

so give me a buzz if you alike

We may be getten a new game plan going

i have a friend who is 16 and she has eds and we are good friend of the family and her mom told us to call and to find out about something called (Palliative care) this is something that hospice offers !! Yes i said hospice but that is not just a place you go to died they can help you with dealen with pain and for people like us that may just what we need ,they help you live your life better .