Some update

Things have been a little hard for me from june up to now. I went and saw my pcp (main doctor) last week and he asked me about my pain in my stoumach and i told him its not that bad but i am haven bad crampen and alot of gas and i have not clue why??? So he is senden me back to the doctor who took out my GB to see if he can help with my tummy!
Heart wise i am going ok i don't have to go back to All Childrens heart clinic till the fall which is a nice break for me i mean i love my doctors there but not this much lol!! But DR. Martinze is keepen a close eye on my heart and my PVS to make sure it dose not get out of hand!
Eye wise DR.Hess said that my eyes are ok and he can't find any thing to do with eds in my eyes which is good .
The bad news time. I am haven alot more pain and joint problems and my left knee is action up agian this is the same one i hurt 2 year's ago when i fell.Also i have to get 4 teeth pulled because the eds is maken my teeth very thine and they hurt so this happends on the 23rd of this month Can you say (ALOT OF PAIN OH GOD NOT LOOK TO THIS )!!!!!!!!
Now for the big trip in the fall i am going to go back to USF Medcial center and going to be Re-typed for EDS to make sure there is nothing funny going on i go there in november on the 7th i think .
Oh Mom and i are going to be interviewed by fox 13 news same time soon and its goign to be a thing on EDS . I took to on myself and wrote to the doctor who has a spot on the news and she said it would be a great ieda to do a show on eds. Not sure when it will happen but i will post when i know .
WOW I GEUSS THAT WAS ALOT (LOL)
C-YA ZEBRAGIRL OUT !

Newest up date !

Hey everyone i am so sorry ihave not posted sooner but i have been sick and i have been very very down . Frist off i am out of my anit- depression med's and i can't get more beucase the mental health place is not going to carry the cymbalta anymore and then they gave me something different that i have tryed and its make me very very jumpy and i was breaken down and stuff like that.

So i have to waite till June 11th to go back to my (PCP) and see if he can give me the cymbalta agian because i was feelen pretty good on it . I am still haven trouble with my GI track and i have not been able to get to the GI doc because my health coverage has changed and i now have my medicade card so i i have to waite till june.

My pain (UGH GOD I HATE IT !!!) i am going to ask my doctor to send me to a pain clinc because the pain is getten so bad i am chewen on my lower lip and its all sore and bleeded and stuff. so that is not good . my lortabe is just not doing it any more and i feel so sick all the time and half of the time i do get sick !

I go back to the heart clinc on june 1st for them to check out my (PVS) and to see if my heart is ok from the EDS. but other then that i just try to take one day at a time because that is all you can do .. AND DUCK TAPE NEVER HURTS TO USE TOO ...