Some update

Things have been a little hard for me from june up to now. I went and saw my pcp (main doctor) last week and he asked me about my pain in my stoumach and i told him its not that bad but i am haven bad crampen and alot of gas and i have not clue why??? So he is senden me back to the doctor who took out my GB to see if he can help with my tummy!
Heart wise i am going ok i don't have to go back to All Childrens heart clinic till the fall which is a nice break for me i mean i love my doctors there but not this much lol!! But DR. Martinze is keepen a close eye on my heart and my PVS to make sure it dose not get out of hand!
Eye wise DR.Hess said that my eyes are ok and he can't find any thing to do with eds in my eyes which is good .
The bad news time. I am haven alot more pain and joint problems and my left knee is action up agian this is the same one i hurt 2 year's ago when i fell.Also i have to get 4 teeth pulled because the eds is maken my teeth very thine and they hurt so this happends on the 23rd of this month Can you say (ALOT OF PAIN OH GOD NOT LOOK TO THIS )!!!!!!!!
Now for the big trip in the fall i am going to go back to USF Medcial center and going to be Re-typed for EDS to make sure there is nothing funny going on i go there in november on the 7th i think .
Oh Mom and i are going to be interviewed by fox 13 news same time soon and its goign to be a thing on EDS . I took to on myself and wrote to the doctor who has a spot on the news and she said it would be a great ieda to do a show on eds. Not sure when it will happen but i will post when i know .
WOW I GEUSS THAT WAS ALOT (LOL)
C-YA ZEBRAGIRL OUT !

Keepen Hope Alive

I try with all of my heart to belive that god has a plan for me , and that is why i must suffer but lately i find myself thinking that my life is more of a pain filled hell . I just can't understand why i have to suffer so much , what i have i done worng that god is maken me live a life of pain.My doctor's don't know what to give me to take the pain away, they don't know why i am haven chest pains , or why i am haven these headachs that have been going on now for 2 1/2 months . I am just finding it very hard to cope with everthing that i have to handle . I mean i am to young for all of these things to be holding me back . I was told that by the age of 23 i would be in a wheel chair full time . That has not happened but i am in one alot of the time and i have to use my cane and a walker but alot has to do with the pain . I just can't see the light at the end of the tunnal and i am running out of hope .But i know i can't let this illness take over and i know i can't give up but you have no clue how many times i have wanted too. I can't let this win i just hope i am storng enough to hold on to HOPE ..

Sick agian !

Hey well i am sick agian i have been this way for two weeks now and i am not getten any better i have had two rounds of meds for this upper resptory infection. All i know is that i am coughing like crazy, My sinuses hurt ,and my throat is killing me .

What makes to even worse is when i am sick i hurt like hell and non of my pain meds are worken for the pain plus i have tooth ach on top of all of this .

Well i am going back to bed C-YA